UNIGHT - Discuss. Share. Connect.

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UNIGHT - Discuss. Share. Connect.

Enjoy a virtual get together each month to discuss, share, and connect with others in the sleep disorder community.

By Hypersomnia Foundation, Inc.

Date and time

Starts on Monday, January 29 · 4pm PST

Location

Online

About this event

UNIGHT

Discuss. Share. Connect.

Join us Monday, January 29th via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion with Dr. Kiran Maski about "Treatment Options for IH."

Kiran Maski, MD, MPH, is an assistant professor at Harvard Medical School and a child neurologist and sleep medicine specialist at Boston Children’s Hospital. She is also a member of the Hypersomnia Foundation’s Medical Advisory Board.

Dr. Maski received her medical degree from the University of Wisconsin and completed her general pediatric residency at Tufts-New England Medical Center. She received her pediatric neurology residency and pediatric sleep fellowship training at Boston Children’s Hospital (BCH). She now runs the Neurology Sleep Clinic at BCH and is the assistant program director for the Child Neurology Residency. Dr. Maski’s clinical work and research is focused on pediatric narcolepsy.

Dr. Maski has created a hypersomnia clinic at BCH where she sees children and young adults with central nervous system hypersomnia conditions from all over the world. She is an advocate for pediatric narcolepsy, promoting awareness of this condition among health care providers and schools. She was honored with the “Outstanding Physician” award by Wake-Up Narcolepsy, a patient advocacy group, for this work in 2015.

Dr. Maski currently serves as the Chairperson of the American Academy of Sleep Medicine Task Force for the Treatment of Central Nervous System Hypersomnias. Her clinical research in narcolepsy is focused on neurophysiological biomarkers that help diagnose and treat narcolepsy patients. She has received grant support from the American Academy of Neurology, American Sleep Medicine Foundation, Wake Up Narcolepsy, BCH Research Council Fund, and Jazz Pharmaceuticals, Inc.

We hope you’ll join us for the January 29th UNIGHT meeting for a lively and informative discussion with Dr. Kiran Maski. UNIGHT is a great opportunity for everyone to discuss, share, connect and just be ourselves.

Registration is FREE!

Zoom link will be sent via email after registration.

Questions? Email info@hypersomniafoundation.org

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Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.

Organized by

MISSION STATEMENT

The Hypersomnia Foundation engages, informs and champions our global community to improve the lives of people with idiopathic hypersomnia and related sleep disorders.

OUR VALUES

PASSION: We give voice to the significant unmet needs of the hypersomnia community, continuously striving to realize our dream of a cure.VALIDATION: We understand what it is like to live with an invisible disease. When you share your story, we believe you.INCLUSIVENESS: We believe all people with hypersomnias deserve timely diagnosis and effective treatment in order to live a healthier, more fulfilling life.PARTNERING: We strive to connect our patient community to multiple stakeholders who are critical to improving the lives of people with central hypersomnias. Clinicians, researchers, pharmaceutical companies, educators, regulators and legislators benefit from strong ties to each other and the patient community.TRUST: We are a trusted source of medical information for people with hypersomnia, their physicians and the general public. Your donations and shared medical information are fully protected and used only in accordance with your wishes. DEDICATION: Our team of volunteers and employees devote their time and professional skills—with unwavering focus—to the best interests of the hypersomnia community.

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